Sunday, 30 June 2013

Vitamin D - the effects from Chemo...and the importance of understanding it!

One of the things that the chemo does to the body is wipes out the vitamin D levels.  So a blood test is done each time to keep tabs on the levels.  Vitamin D is essential for the body so it can absorb calcium, which of course is required for healthy bones.

So I got a call on Friday from the Marisa, the Oncology Nurse, saying my Vitamin D levels were low (not real real low but low).  So she said to increase the supplement dosage.  In the meantime I have done additional research in this area ...here is a bit more for you.  If you have any friends going through chemo please share with them!

Off to take another vitamin d supplement!

Some Useful information on Vitamin D:

To keep bones strong, your body is constantly breaking down old bone cells and growing new ones, the same way it sheds and replaces skin cells. To fuel bone growth, keep bone density strong, and prevent osteoporosis, you need a good supply of calcium from dairy products and other foods.
But you also need enough vitamin D. Without it, you could drink milk all day and the calcium in it wouldn't do you much good. Vitamin D is key in absorbing calcium from the food you eat -- calcium that would otherwise get sent out of the body as waste.
Along with weight-bearing exercise, calcium and vitamin D go together for good bone density -- and good health in general. Here's some advice on how to get more calcium and vitamin D in your diet.

Boost Your Diet

Your body doesn't make calcium on its own. The best way to get more calcium is to improve your diet. You already know that dairy products -- such as milk, cheese, and yogurt -- are good sources of calcium for those who don't have lactose or other dairy intolerance. Other foods that are high in calcium include:
  • Spinach
  • Kale
  • Okra
  • Collards
  • Soy beans
  • White beans
  • Some fish, like sardines, salmon, perch, and rainbow trout
  • Foods that are calcium fortified, such as some orange juice, oatmeal, and breakfast cereal
It's a lot harder to get enough vitamin D from foods. Vitamin D is only in a few foods and often in very small amounts. Foods that provide vitamin D include:
  • Fatty fish, like tuna, mackerel, and salmon
  • Foods fortified with vitamin D, like some dairy products, orange juice, soy milk, and cereals
  • Beef liver
  • Cheese
  • Egg yolks
Getting enough vitamin D from your diet isn't easy. Studies show that typically only about 20% of our vitamin D comes from the foods we eat.
Your body can make vitamin D on its own. When you walk out into the sunlight with exposed skin, your body naturally produces vitamin D.

How to Get Enough

***
I have added another article here....

How can vitamin D levels be maintained during chemotherapy?

Research on maintaining vitamin D levels during chemotherapy treatment is still in early stages. Doctors at the Roswell Park Cancer Institute tested 2000 IU/day of supplemental vitamin D given to their colon cancer patients in a randomized trial. The average level of vitamin D for all patients at the start of the trial was 17.5 ng/ml. After six months of supplementation, this rose to a healthy 37.5 ng/ml for non-chemotherapy patients, but to only 29 ng/ml for patients on chemo, which is still insufficient. A similar trial was run with breast cancer patients, using low dose (1000 IU/day) or high dose (50,000 IU once per week). Patients started the trial with an average of 27.5 ng/ml. On the low dose, patients' levels increased by only 9.4 ng/ml. However, the high dose increased patients' vitamin D by 24.3 ng/ml, which brought their levels into a healthy range. These trials confirmed that chemotherapy may reduce a patient's ability to utilize supplemental vitamin D, requiring them to take much higher doses than normal to achieve sufficiency.

The mechanisms by which chemotherapy drugs lower vitamin D in cancer patients remain unclear, but could include decreased absorption via subclinical mucositis or increased metabolism of vitamin D via the activation of enzymes such as CYP3A4. Until further research is completed, there is a risk that most (if not all) chemotherapy drugs may depress patients' vitamin D levels. Cancer patients taking these drugs should therefore consider monitoring their vitamin D status throughout the treatment period as well as aggressive supplementation to maintain adequate levels which are associated with a better prognosis.


Learn more: http://www.naturalnews.com/037663_chemotherapy_drugs_vitamin_D_deficiency.html#ixzz2XhP6iVli

PS-thanks Marg for sending through the photo of the hummingbird in your garden...I LOVE IT!

Monday, 24 June 2013

A healthy Attitude

Today I finally have shaken my body of the last chemo cocktail haze ....and hopefully for the last time in this life!  Certainly the last time on this part of the journey.

To celebrate, I'm also drinking lots of Green Gunk that Tony laboured making me on the weekend!  Doesn't look nice and isn't as nice as a nice glass of red ...but if it helps get my body back on track, I'm all over it!

Here are some recipes if interested:
Juice Recipes
Gersen Therapy (sent through by my dear friend Adriana who spent many hours juicing in the past for a family member).

It's a reminder to enjoy our days when feeling good!

A healthy attitude is contagious but don't wait to catch it from others. Be a carrier.
Tom Stoppard

Friday, 21 June 2013

Very Quiet post last chemo treatment...

Yes, I know I've been very quiet this week post my last chemo treatment.  The good news is that I this has probably been the best week ever post chemo treatment...go figure that?  That of course doesn't mean that I had no impact so I decided to dig deep and just be "quiet" on the blog front during this week.

Unfortunately it's been a very busy week at work (I worked from home but still working) so it took all the energy I did decide to spend this week between family and work.  I've had several people resign from my group this week as well as having it be the mid-year busy time.  I know, I know...most of you have said it to me before, you are worried that I get too busy at work especially during such a big week.  But this is exactly why I decided to be quiet this week and only do things that were "necessary".

I went to the surgeon yesterday and all thumbs up on the healing side there.

The next several weeks are still putting together a health plan that I will openly share.  It's an interesting space where the perception is just because one finishes up with chemo that the treatment is done...well, I thought that too up until Monday!  Now it's understanding the impact of the chemo and the battle the body has been under and getting it back up to full strength.

So with that, I'm going to go make my Green Gunk juice (broccoli, kale, cucumber, green capsicum, radishes, and apple...I know it sounds terrible but these are the type of things that I need to include in my diet to get my body back in shape...and it's really not that bad).

To enjoy good health, to bring true happiness to one's family, to bring peace to all, one must first discipline and control one's own mind. If a man can control his mind he can find the way to Enlightenment, and all wisdom and virtue will naturally come to him.

Buddha 

Wednesday, 19 June 2013

Go Tour de Crawf!

Tomorrow I would have liked to go down to the Casino at 7am and support Shane Crawford as he rides off into the sunrise to raise yet more funds for BCNA by riding his bike from Melbourne to Perth!!!!!   But for me tomorrow is my really challenging day through this last bout of chemo and so will have to stay at home and send him all our Hawthorn love from afar.  I'm hoping to get Tony there all dressed up in PINK to support Shane and his energy and drive behind raising awareness and funds for BCNA.

Tour de Crawf support BCNA

Go Crawf from Team Laurice!!!!

If you would like to donate money to the cause please click on the link above.

Monday, 17 June 2013

Done and Dusted!

Tony and I now have the chemo day routine down to a well practiced day out. We start at the oncology room and I first get my blood test. Then we head off for a nice breakfast at TriBeCa, which is a block away. I had the Greek scrambled eggs and a long mac...breakfast for champions!  We finished up there and went to the Oncologists office.  Michael, the Oncologist, does a physical check and then a mental check. He must have understood I was in a good space as our banter was along the lines of talking about this being my last treatment and he said, "oh yeah, about that, I think maybe a couple more...".  I squinted my eyes and asked him if he was changing jobs or  if he was moonlighting as a comedian and practicing on me?  We all laughed a good laugh.

I then walked across the hall back to the Oncology unit and was kindly ushered to my seat by nurse(Alison) who had a huge welcoming smile.  She seemed cool and collected but later on when my machine started beeping and she couldn't get it rectified she showed a bit of stress and growled, "bloody hell, this machine is giving me the sh!ts". I asked her if they had a Alt-Cntl-Del / reboot button, but she was too flustered to hear me.  But once she got that sorted and I was back on track.

Then it was the time for the dreaded chemo cocktail that I react to....and low and behold I kept my perfect score! I am just a sensitive soul you see! I forewarned Alison and she was poised and ready so I didn't have any huge impacts. Tony was confused as Alison switched the normal order of the two chemo treatments and as such was confused at why I was reacting. So no good photos this time of the reaction.

Since I reacted, they gave me more Phenergan which promptly put me to sleep.  I have been lacking sleep over the past week or two so this felt great! They had to wake me up to tell me I could go!

Tony and I practically skipped out of the hospital.  We went to Fitzroy and had a meal before heading home...to receive huge cuddles from the kids and Nanna.

(My shirt that say's, "My To Do list.  1. Beat Breast cancer (tick) and 2. Take over the World"

Now I sit here in front of the fire, with my champagne in hand, enjoying the thought of growing hair back and enjoying life without cancer!

Today's Reminder (I found in the Toilets at the hospital):
This blog does not stop with the cancer treatment...the journey ahead is just as much a part of the cancer treatment because it becomes the "silent" journey for many.  The part of healing, of making life changes, the part of resting and be good to yourself, and remembering to look at life through a renewed energy for living life and not "sweating the small stuff".  More blogs coming soon.

Saturday, 15 June 2013

Last One!

Tomorrow is the last of the chemo treatments...a little bit excited on this end to say the least!

So this weekend has been about physically resting up (although I'm busy reading reports all day today and a report is due out tonight on them).  It's about drinking lots of water to help the body prepare for the chemo.  It's about taking lots of vitamins.  And it's about preparing the mind for the week ahead and getting ready for the physical aspect of the last chemo cocktail.  Since the effects are cumulative, and each time has been slightly different, I'm preparing myself for "whatever comes".

So this next week is about taking it day by day and relishing in the fact that this is the last one.

So what's next people ask?  We'll leave that to the coming blogs as it's something I've been thinking a lot about and what things I can do to ensure I live life to the fullest but also in a balanced and healthy manner.

Thanks again for the many texts, calls, gifts of love that have come in so many different ways, and supporting the family and I through this time.

Chemo Cocktail Number 4 - bring it on baby!

Sunday, 9 June 2013

Counting Down to last Chemo!

I originally had my next chemo scheduled for tomorrow but due to the Queen's birthday holiday we switched it to next Monday.  So I have a "free" week this week.  I'll use this week to build up my immune system (lots of Vitamin C!).  It's a very very busy week at work so the rest bit will be a challenge.  Next weekend is NO ACTIVITY in preparing for the last chemo session.

I have felt pretty good this week but due to the demand at work and at home it was a difficult week to "get the balance right".  My team at work was helping look after my best interests by asking if I had eaten lunch each day as they saw me dash from meeting to meeting, as well as noting that I was leaving later than I had wanted to each night.  This will be the continued challenge in going forward in the coming months....how to keep the balance right in a continued demanding lifestyle.

But I feel great.  I feel strong.  I feel positive.

 

Do not dwell in the past, do not dream of the future, concentrate the mind on the present moment.
Buddha

Saturday, 1 June 2013

High Tea - Raising Funds for Mcgrath Foundation

Yesterday I participated in yet another fund raiser but this time to help raise funds for the McGrath Foundation.  This eventuated out of what I might call a long string of dots that were then all finally connected yesterday.

We had over 50 people in attendance and raised several thousand dollars (more on that once everything is tallied up).

A very special thank you to Pauline and all the women who work at Celebrate Cleaning (a sustainable cleaning company that is helping do their part by cleaning without using toxins, chemicals or allergens when they clean their clients houses/offices).  The high tea was a magnificent way to spend the day together with beautiful people, lovely music, food as well as make ourselves aware in a supportive and fun environment.

A huge thank you to my employer, BP, who are going to match the funds that we raised at the high tea that will go to further fund more regional breast care nurses around Australia.


The presentation I did is cut and paste below.

HIGH TEA 1 JUNE 2013 – MCGRATH FOUNDATION
20 MINUTES

MY JOURNEY- Synchronicity, Symbolism and Support

Firstly, I would like to thank Pauline for putting this event together today.  She is an amazing person who has decided on her own accord to hold this event and bring us together for no other reason that raising awareness and funds for women with cancer.  That is what I call an amazing effort….an amazing effort but shared belief in the positives of synchronicity or connections can bring.  (One of my staff challenged me to ensure I got some help in the household as I my balance was not right…went to Nat the next day….Pauline came into the conversation within 24 hours…and here we are).

Secondly, I would like to thank all those who are here from my different networks that are here today supporting me but more importantly supporting each other and the AWARENESS piece of this conversation.  I would like to have all of you stand so we can all thank you together….

Third I would like to thank BP, for agreeing to match the funds back to the McGrath Foundation, whom we are currently the largest supporters of and have committed to raise $300,000 for them in the coming two years.

I thought I would start this conversation with the Awareness piece first…then move to synchronicity …and then onto Support…

AWARNESS
If I can have three people at each table stand…Doesn’t matter who…now, here is the real story…one in 3 people in Australia will have cancer.  This means it will be random and it could be any one of you.  That’s pretty staggering.

·         1 in 2 Australian men and 1 in 3 Australian women will be diagnosed with cancer by the age of 85.

But I do not dwell in the numbers and statistics as many of you know who know me.  I focus on the positives…so the the good news is

  • The survival rate for many common cancers has increased by 30 per cent in the past two decades.

But the awareness piece is what contributes to that increase in the survival rate!  So we’re here focusing in on the making a positive influence on that survival rate!

MY STORY

Cancer was NEVER ever in my plan – still isn’t by the way.  My story is just a nameless, faceless story in the name of cancer to be honest…nothing special in any way.  So I won’t dwell in the story but more on the positive impact of my story which hopefully is the difference to others…because I refuse to have my story be a negative one.  What I hope is different in my journey is being open and honest and talk about it so it can help others and hopefully save some lives.

The LUMP

Let’s go back to the moment when I knew that life was going to be a bit different…  Let’s put this all in context….In January I had four team members that were dealing with cancer either themselves of their family members on a daily basis.  Since that time three of the people have passed away….

So, when I found a very large lump on my breast I late February it was a a real “ah shit moment”….if I had not had the current awareness I am not sure I would have been the right thing by calling the doctor that same day…and the doctors office said, “okay we’ll see you on Monday”.  Hmmm…no messing around…that’s good…?.  But wait, let me check my schedule (okay, self talk moment…yes, I had things scheduled and I was BUSY…but I was going to have to re-schedule).  I went to the doctor and it was clear throughout the day as I did the mammograms and ultrasounds and then being walked to the surgeons office and then being walked to the biopsy room that there was a sense of urgency building.  By the time I got out of the office I called my husband to tell him about my day (of which I had not shared with him ahead of time).

You need to have a mastectomy…what are you doing tomorrow? Tomorrow was a bit too much for me.  What went through my mind was the following week was International Women’s Day….and I had been working on the NAWIC event where we were hosting 300 engineers….that should be the day I should do it.  Where I get the energy of the NAWIC group I have put so much energy into over the years.  Synchoronicty…this was the first moment of the connecting the dots and the synchronicity for me.  But then it continued on…

Funnily enough, that morning I had exchanged emails with none other than Maxine Morand.  I said this to the doctor after he handed me a BCNA book.  I said I knew of the organisation and of Maxine.  He then asked me “why and who was I that I knew Maxine”.  I explained that I had been President of NAWIC and I run a mentoring program and had gone looking for someone to help fund the program where we set up mentoring for over 100 engineers each year.  I had gone to Maxine when she was Minister for Women and asked for funding.  And as a result she was going to be our guest at the upcoming IWD event.

So the Surgeon started telling me about his daughter who was an engineer who was currently working up in Tibet and a mentoring program would be great and highly beneficial.

We walked out of the room and my husband turned to me and said, “only you” …only you can turn any situation into a positive one.  I don’t know how you do that.

In the coming week I felt like my balance “In control/Out of Control” balance was not right….

In Control:

1.     The election to do surgery

2.     The election to do chemotherapy

3.     How I tackled the challenges that lay ahead

Out of control

1.     Outcomes of the surgery

2.     Outcomes of the body scans to know where the cancer had travelled to

3.     Losing hair if I can to have chemo

4.     Feeling terrible if I can to have chemo

5.     The outcome of my prognosis

So the “out of control” was bigger than the “in control” column…I don’t do well in that space (not that I’m controlling or an “A-Type personality”.

I needed to get a more balanced spread sheet in my mind.  So…how do you do that in life?  What I do is think about the positives and how I can compound them as much as I can

My thoughts at that point in time were this….

Finding the Positives…through Synchronicity

I am a true believer of the Power of Positive thinking.  I always have been.  I try to always rid myself of any negative thoughts so not to fill my body with those type of toxins (my toxins are champagne and coffee!).  So there were some very strong Symbolism's and Synchronicity that came up at the early stages of the cancer diagnosis which I have held fast onto.

I would like to share those with you…

The bear.  My girlfriend Narelle, who is here, came across what she reflected upon in her own way and found that the Bear she felt was a strong totem or symbol of me.  I will read a portion of the bear meaning….

Bear Medicine—that is, power specifically associated with the spirit of the bear, particularly the ability to heal—is known in virtually all cultures within the bear's range.

The bear is also known in many cultures as a great healer, since it seeks out plants for its own healing.

As an animal that disappears in winter to reappear only in spring, the bear is also the symbol of renewal, rebirth, and the regaining of health. Bear is also a species known for its strong maternal ties. Bear medicine is powerful medicine, bringing healing, renewal, and rebirth. This is the gift that Grandmother Bear brings those who live in bear country.

On the same day that she shared this with me, there were several bears that came my way as gifts.  Please note I also have a bear now on my necklace.  So I use the bear when thinking of strength in healing.

1.     The Hummingbird.  For those of you who have been around me and have read my blog you will be well aware of the Hummingbird.  As I lay in the hospital bed the first couple days after my mastectomy, my husband Tony pointed out to me that there were hummingbirds all around me…had I noticed that? 

a.     The blog we started

b.     The new PJ’s for the hospital

c.     A couple cards

d.     A sticker I found on my dinner tray of a hummingbird

So when I mentioned this to Emma, the nurse who was on duty at that time as I sat and reflected upon this.  Amazingly enough several days later she came back to my room and decided to read what she had found on Hummingbird Symbolism….  This was a real inspirational moment for me as she took the time out not to only research the topic but then she came in, sat down, and read what she had found.  It was a very touching moment.

"The hummingbird symbolises many different concepts. Because of its speed, the hummingbird is known as a messenger and stopper of time.  It is a symbol of love, joy, and beauty. The hummingbird is also able to fly backwards, teaching us that we can look back on our past. But this bird also teaches that we must not dwell on our past, we need to move forward. When the hummingbird hovers over flowers while drinking nectar, we learn that we should savour each moment and appreciate the things we love.  They teach us courage. Having the courage to refrain from creating new trauma by communicating from non-violent  towards ourselves and others is an important part of healing. Recovering lost parts of ourselves enables us to become healthily independent. By observing the hummingbird, we see they are seemingly tireless. Always actively seeking the sweetest nectar. It reminds us to forever seek out the good in life and the beauty in each day.  This quality reminds us to be persistent in the pursuit of our dreams and adopt the tenacity of the hummingbird in our lives."

 The story kept then going in the following days where there was an organisation I was introduced to, ZONTA came into my life.  This came full circle within 24 hours…and it went something like this…The new CEO of NAWIC met with the Queen Vic Women’s Centre and mentioned my new challenge.  Alex over at QVWC then sent me and email to say her mum was going through BC and that Zonta provided pillows for women going through a mastectomy and I may want to contact them.  I found the website and sent them a note…but it went to the wrong state.  So then when Victoria chapter got back to me I noticed the email came from Bendigo.  I asked the woman if she might just know either of my friends Clare or Antoinette who live in Bendigo…and low and behold she knew of them and had just been in contact.  So I let Antoinette know this and she came back to say she was going to contact Zonta that day for a pillow for me!  So I wrote this back to Anne and her email had come back and said,

Hi Laurice, 

The story continues to surprise me.  Just further to all that, I received today, a birthday card from the mother of an ex DIL which was great to receive however it was a beautiful bejewelled card with hummingbirds and there was a card included that gave the reason and story of this special bird that made me think of you for obvious reasons.

Hope all is going well

Regards
Ann”

When I then shared all this on the blog my step-mum called in tears.  She said, “you know what my mother, Grandma Wu, said to me when she passed away?  She said you will know when I come back to see you as you see the Hummingbird”.  So the Hummingbird has now been welcomed into our home and a strong positive influencer that makes us all feel really good, including my husband. 

So the Hummingbird not only brought my family, friends, but now BC support network together…and thus a very powerful positive message of moving forward and seeing the beauty  in each day.  Please note…I have  hummingbird on my necklace next to the bear!

 SUPPORT
Support is a very important topic of conversation.

I do not find myself a person that is knows how best to support others when in “need”…I have always survived on what I feel and do best…which is sometimes unorthodox.  AND like many of you, I am not particularly good at asking for help.  So when those two are combined I was at a bit of a loss of what to do.  My natural inclination was just to say, “no thanks”.  But knew that if there was ever a time I needed support that this would be it. 

So I:

1.      Accepted the offer of my dear girlfriend Marge back in the US to come and stay with us during the time of the surgery and into the first chemo.  Her kinds efforts are indescribable as many of you would know who also now have her in your lives through this connection!

2.     Accepted several close girlfriends (who are here today) to take command of planning and organising others to help so I wouldn’t have to do it.

3.     Helped plan meals based on the families “likes and dislikes” and not just blindly take food that we wouldn’t eat.

4.     I just have said, “yes” when people have offered to help

For many of you who are like me you know that this was a huge step for me.  We women tend to be the caretakers of the family…so to let others help can be a challenge. 

I even have to do a huge amount of self talk when I am feeling good and feel like I should be doing the cooking (or other things)…and tell myself that it is okay and that just because I feel good…this is still the time to REST!             

I have many friends and family both in this room and around the globe that are so far away who have tried to figure out how to best support me…you/they all find a way…through:

·          food, books, poems, earrings, beanies, symbolism's, texts, jokes, stories, emails, packages…

what ever they are comfortable with.  Because they know that I trust them and they trust me and whatever feels right to them is my positive support.

Here is a perfect example of support that came to me today…

“Hello there you rashy thing!

I hope those bumps are subsiding and life is getting back to normal after your bout with the reaction.  But I leave it to you to take it all in stride and move forward.  You have always been gifted in that department, and this bout with Miss Bitchy C is no different.  If anything, I think you've dug in your heels even more....something Miss B.C. probably had no knowledge of.  I have no pity for her whatsoever; I've already packed her suitcase for you and have her on the next plane to absolutely no where.  To circle her own Dante's hell forever!!!!

Wow.  

I started to say not sure where that came from, but then realized that I've been mad as hell each time I read your blog.  How dare a disease like cancer take up residence in a woman who is so vital, resilient, vivacious, loving, giving (did I mention 1000%) and given to life itself.  You are, in one word, amazing. For whatever reason, I just now saw your photo in your hot pink BP suit.  You, my darling LT, look like a glam movie star!!!  Simply beautiful”

So I will now summarise with AWARENESS….

So if I can leave you with one thought that is now that we are all MORE AWARE…we can never be unaware!

HEALTH CHECKS

·          Do your health checks

·          Don’t feel like you’re too busy to take care of you!

·          Support others in your own way – it will be the right way

The greater the awareness …the greater the opportunity to save lives…it may be your life or one of a loved one that you are saving.

 Thank you for letting me be here with you today!